It will help ensure the
efficient use of scarce expertise, and the targeted use of health care resources to maximise the benefits for all patients and families affected by rare disease across the UK

Latest Partners

Breathe On UK

Children's Mitochondrial Disease Network

Help the Hospices

Lymphangiomatosis & Gorham's Disease Alliance - Europe

Proteus Family Network UK

 

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Policy Responses

Below are some of our recent policy responses

Consultations

Department of Health Consultation on Strengthening National Commissioning (pdf) February 2010

Department of Health Consultation on an Innovation Pass Pilot (pdf) February 2010

Inquiries

House of Commons Health Committee Inquiry into Commissioning (pdf) September 2009

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